111K views · 493 reactions | Police Nationale d'Haiti - PNH on Reels | Facebook

71K views · 1.7K reactions | PNH : AVIS DE RECHERCHE | Police Nationale d'Haiti - PNH | Facebook

This #PNHAwarenessWeek, and every week, we are committed to supporting people living with PNH, a rare & chronic blood disorder. We spoke to Aplastic Anemia and MDS International Foundation about efforts to help patients live life beyond their diagnosis: https://bit.ly/3QTIPRY | Novartis

The primary symptom of PNH is having the sudden need to urinate, usually at night and it comes out dark or reddish in color. Alarming, we know. But what exactly is going on inside your body to cause this and other PNH symptoms? It helps to understand what’s known as the “complement system.” Here we talk through how it’s supposed to work, and what goes haywire with it in PNH. https://bit.ly/3F8nzRr | HealthCentral | Facebook

How do you deal with PNH? Symptoms, medications, transfusions? These four patients discuss the life they have experienced with Paroxysmal Nocturnal Hemoglobinuria in this recording: https://www.aamds.org/webinar/pnh-patient-panel | Aplastic Anemia and MDS International Foundation | Facebook